House members heard from a Charlotte father whose son suffers from a debilitating genetic disorder.

Glen Stephens of Charlotte spoke from Central Piedmont Community College in Charlotte. He described the ravaging effects his son suffered from Aicardi-Goutieres syndrome, a genetic disorder that has severe and debilitating effects on the brain.

"While most families are enjoying smiles, eye contact, first syllables and first words, my wife and I were dealing with screams, absent stares, stiffness and a complete lack of communication," Stephens said.

His son is 3, but developmentally is comparable to a 6-month old. Stephens said he and his wife are barely holding on as they try to care for their son and keep a job.

Stephens urged House members to keep benefits and programs for families who have to care for disabled children.

"My son, Gabriel and the children like him, they don't understand politics, economic downturns or budget deficits," Stephens said. "They live moment by moment and day by day."